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Friday, October 25, 2000
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Unnecessary Mastectomy Common in U.S.

Informed Consent of Breast Cancer Patients Called Into Question

     WASHINGTON, DC -- Many women who have a breast removed as treatment for cancer do not need such radical surgery, according to an article just published in the Journal of the American Medical Women's Association.  In the article, "The Need for Improved Informed Consent for Breast Cancer Patients", Diana Zuckerman, Ph.D., concludes that whether a woman undergoes a mastectomy or a lumpectomy (which removes the cancer but not the breast) depends less on her specific diagnosis than on other factors, such as where she lives, her income and health insurance, where she receives medical care, her age, and the age of her doctor.

    Though it's been known for years that lumpectomy and other breast-saving measures are just as effective as mastectomy for patients in the early stages of breast cancer, in most parts of the country most of the women who receive an early-stage diagnosis will undergo the more radical and disfiguring surgery, writes Dr. Zuckerman, president of the National Center for Policy Research (CPR) for Women & Families and faculty member at George Washington University.  "Limited information and biased recommendations are undermining breast cancer patients' choices," she asserts.

    The article, published during National Breast Cancer Awareness Month, reviews dozens of medical studies, and concludes that many of the more than 182,000women who are newly diagnosed with breast cancer every year do not have access to all the information they need to make the treatment choices that are best for them.  This raises questions about what doctors know and what they are telling their patients.

    In addition, mastectomy is often followed by "reconstructive" breast surgery that frequently involves the use of synthetic breast implants, procedures prone to complications that require additional surgeries. "When women get mastectomies, they often make choices about breast implants and other kinds of reconstruction that are based, at best, on limited safety information," states Dr. Zuckerman.  "After all the research that has been done, why are so many women undergoing mastectomies they don't need and then having reconstruction that can cause serious problems?"

     One reason, suggests Dr. Zuckerman, may be economic.  In many facilities, it's actually cheaper to remove a breast than it is to perform a lumpectomy and provide the necessary follow-up radiation therapy.     

    Some striking research findings include:

In some hospitals, all breast cancer patients had mastectomies, regardless of their diagnosis.  In one large urban hospital serving mostly poor women in Texas, 84% of the women with early stage breast cancer had mastectomies and only 16% had lumpectomies.

In a study of 157 hospitals, patients treated by doctors trained before 1981 were less likely to have lumpectomies or other breast-saving surgery than women who had younger doctors.

One study indicated that women getting mastectomies were more likely to have followed their doctors' recommendations, but women getting lumpectomies were more likely to have obtained a second opinion, and feltmore actively involved in making the decision.

A study of 175 surgeons found that even doctors who know that lumpectomy is as safe as mastectomy may persuade their patients to get mastectomies by making subtly biased recommendations.  Other studies showed that some women were not even told that lumpectomies were an option.

    "Women deserve better. Breast cancer patients should make the choices that are best for them," says Dr. Zuckerman.  "We need to do a better job of making sure that all doctors and their patients have accurate, unbiased information so that women can make those choices, no matter who they are, or who provides their medical care."

The National Center for Policy Research (CPR) for Women & Families is an independent, nonprofit think tank in Washington, DC, which "translates" medical and scientific information into news that can be used by consumers, policy makers, and the media.  Contact us for more information or visit our Web site at www.cpr4womenandfamilies.org.

Please visit our Breast Cancer section to read an article about the study.

 

 






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