POLITICO, September 12, 2016. A two-day meeting hosted by the FDA kicks off today to hear public comment on four draft guidances to ensure safety of stem cell research.
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As a respected nonprofit health research center, our views are often quoted in the media, including newspapers, magazines, TV, radio, and websites. We also write articles and blogs for a number of different and highly respected newspapers, magazines, and popular websites, and we are published in prestigious medical journals and health policy publications. We frequently express our policy views in letters to government officials and public comments to federal agencies and we sometimes release statements or press releases on newsworthy issues.
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Patient Advocacy Workshops
Researchers in government and medical schools are listening to patients’ perspectives on the risks and benefits of treatments. They need to hear from patients like YOU! We are offering a free workshop for patients and family members who want to be patient advocates
Read More »CMS Panel Tepid on Interventions for Patients With Chronic Venous Disease
Healio, July 21, 2016. A panel of the Medicare Evidence Development and Coverage Advisory Committee of the CMS voted that it has moderate confidence that there is sufficient evidence for intervention that improves health outcomes for certain adults with chronic venous disease.
Read More »21st Century Cures Act: Yes or No? No: Act’s Promise of Quick Cures Is a Brew of Ultra-Hype Mixed With Snake Oil
Chicago Tribune, July 21, 2016. If you or a loved one has a deadly disease, whether it is cancer or a rare disease, you deserve treatments that work. If experimental drugs are your only hope, they should be free as part of a study that you can choose to participate in.
Read More »Physician, Patient Advocates: Don’t Exempt CME From Sunshine Reporting
InsideHealthPolicy.com, July 18, 2016. The president of the National Center for Health Research said pharmaceutical and device companies sponsor most continuing medical education programs because they’ve got something to sell.
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