Improving Outcomes for Long COVID-19 Patients

The National Center for Health Research’s 17-month project on Long COVID, is partially funded through a Patient-Centered Outcomes Research Institute® (PCORI®) Eugene Washington PCORI Engagement Award (EASC-COVID-00344). The project began in September 2021 and ended on January 31, 2023.

This project, entitled “Engaging Stakeholders in Patient-Centered Outcomes Research and Clinical Effectiveness Research to Improve Outcomes for Post-Acute COVID-19 Patients” aims to strengthen collaboration among healthcare providers, patients, disability experts, payers, and employers. It enables these groups to share their experiences with treatments and interventions and encourage engagement in research aimed at improving patients’ outcomes. Our long-term objective is to inspire collaborative research efforts targeted to the patient centered outcomes and clinical effectiveness to answer key questions about specific treatments and interventions for specific patient groups. As part of this project, we hosted 6 virtual 1-hour teleconferences and one in-person brainstorming conference in Washington, D.C. in October 2022. Several of the teleconferences will be available as webinars in early February and the links will be posted below.  More details about these teleconferences, webinars and the in-person conference are below.

Teleconference 1: What Does Research Tell Us About Treating Long COVID?

  • Defining Post COVID Conditions: Monica Verduzco-Gutierrez, MD
  • Long-Term Symptoms of Long COVID: Talya Fleming, MD
  • Long Term Impact of Long COVID Symptoms: Lisa McCorkell, MPP

Teleconference 2: Long COVID and Disability Benefits: What You Need to Know

  • A Brief Overview of Long COVID Social Security and Long Term Disability Insurance Claims: Barbara B. Comerford, Esq
  • Discussants: Chimere Smith and Dr. Irene Estores
  • Webinar 1: This webinar is based on the second teleconference and can be found here.

Teleconference 3: Mind-body and the Integrative Approaches to Long COVID: What You Need to Know

  • Mind Body and Integrative Medicine Approaches to Long COVID:Michelle Simon, PhD
  • Acupuncture for Long COVID:Christine Kaiser, DACM, LAc, FABORM
  • Integrative Therapies for Neuropsychiatric Symptoms of Long COVID: Helen Lavretsky, MD, MS
  • Webinar 2: This webinar is based on the third teleconference and can be found here.

Teleconference 4: Multidisciplinary Assessment and Treatment Models for Long COVID: What You Need to Know

  • Multidisciplinary Care Overview: Alba Azola, MD
  • Integrated Care Models for Long-COVID Clinics:Benjamin Abramoff, MD, MS
  • Multidisciplinary Care: The Patient Perspective:Rachel Robles
  • Webinar 3: This webinar is based on the fourth teleconference and can be found here.

Teleconference 5: Perspectives on Physical Therapy for Long COVID

  • Physical Therapy for Long COVID: Recommended Outcome Measures:Alana Patrick, PT, DPT
  • Rehabilitation Examination and Management: Post-Covid Conditions / Long COVID:John Barry, PT, DPT
  • The Benefits of Physical Therapy (for Long COVID):Rachel Robles
  • Webinar 4: This webinar is based on the fifth teleconference and can be found here.

Teleconference 6: Perspectives of Mental Health for Long COVID Patients

  • Mental Health and Long COVID: Perspectives from patients and providers:Jennifer Olsen MD, MPH
  • Long COVID and Mental Health:Helen Lavretsky, MD, MS
  • Stigma Faced by Patients with Long COVID:Leonard Jason, Ph.D
  • Webinar 5: This webinar is based on the sixth teleconference and can be found here.

 

Our In-Person Long COVID Conference on October 3rd, 2022 featured 6 panels on the following topic: Autoimmunity, ME/CFS, Challenges of Caregiving, Long COVID Among Children and Teens, The Role of the Veterans Administration, and Ongoing Research. The complete agenda and information about the speakers are available at https://www.center4research.org/long-covid-conference/

 

If you have any questions, please contact us via email at info@center4research.org.

 

The Patient-Centered Outcomes Research Institute® (PCORI®) is an independent, nonprofit organization authorized by Congress in 2010. Its mission is to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work.