The National Center for Health Research’s 17-month project on Long COVID, is partially funded through a Patient-Centered Outcomes Research Institute® (PCORI®) Eugene Washington PCORI Engagement Award (EASC-COVID-00344). The project began in September 2021.
This project, entitled “Engaging Stakeholders in Patient-Centered Outcomes Research and Clinical Effectiveness Research to Improve Outcomes for Post-Acute COVID-19 Patients” aims to strengthen collaboration among healthcare providers, patients, disability experts, payers, and employers. It enables these groups to share their experiences with treatments and interventions and encourage engagement in research aimed at improving patients’ outcomes. As part of this project, we are hosting at least 6 virtual 1-hour teleconferences, 2 webinars and one in-person brainstorming conference in Washington, D.C. in August 2022. Our long-term objective is to inspire collaborative research efforts targeted to the patient centered outcomes and clinical effectiveness to answer key questions about specific treatments and interventions for specific patient groups.
Our next teleconference, on multidisciplinary approaches to treating Long COVID, is scheduled for June 30. For more information, please email Nina Zeldes at firstname.lastname@example.org.
The Patient-Centered Outcomes Research Institute® (PCORI®) is an independent, nonprofit organization authorized by Congress in 2010. Its mission is to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work.